WHAT'S UP, DOC? (UPDATED)

Priya has been meeting all her new doctors here in Charlotte.  So far, we like all of them a lot!  She has met her new pediatrician, geneticist, oncologist, and ear/nose/throat doctor, and plastic surgeon.  We have yet to set up appointments with GI or orthopedics.

This is what the ENT said:

Large tongue.  Large cleft.
Probably cleft repair in two stages, soft first and then hard.  Once cleft is repaired, there won't be much room in her mouth due to her tongue.  Large, unreduced tongue may cause problems with healing of repaired palate.  Needs tongue reduction, front and back (two procedures).  Keep the g-tube in; it's great she has it. Let's do a hearing test and sleep study in near future.  Come back in six weeks.


This is what the surgeon said:
Large tongue.  Large cleft.
Let's try to avoid the tongue reduction.  Tongues usually do not affect palate repair.  Only one palate repair surgery, both soft and hard, no earlier than 9-12 months.  Too early to give a timeline.  Most of the kids I do these surgeries on don't have g-tubes, so do what you want with it.  Come back in six weeks.

Hmmm... I hope they compare notes before our next visits.