Wednesday, January 22, 2014

IT'S A COLD, COLD WORLD


Well, despite our best attempts to avoid it, Priya and I caught the cold bug.  She is tolerating it well--better than I am.  We were always a little bit anxious about the thought of her getting her first cold or flu, as we didn't know how this would affect her oxygen saturation levels, but so far, she has been doing great and staying in the 90's!

Today, we met with Priya's ENT, who did a laryngescope, and we got GREAT news!  He doesn't think the thickness of Priya's tongue is going to be a problem for her airway after palate repair!  This is the first time we have got such great news!  His recommendation now is to go conservatively regarding possible tongue reduction and to take a wait-and-see approach.  We have a second opinion with Dr. Marsh and his ENT in St Louis on Tuesday.  Fingers crossed that everyone will agree!  It would be great if all we had to worry about were her cleft palate surgeries!
Priya does have thick fluid in both ears, so we will have them put tubes in her ears during her first palate surgery, so she doesn't have to go under anesthesia twice.

In the meantime, she is finally trying to get up on hands AND knees.  It's about time that she figure out hands and knees takes less energy than planking!  She continues trying to gain improved balance while standing and learning a few words in sign language.  So far "daddy" and "up" are her signs. I am really surprised she hasn't tried doing "milk" yet.  

We had a visit over the weekend from Mama, Sister (Mike's Aunt Norma), and Uncle Jerry.  This was the first time Mama and Priya got to meet each other.  Mama and Sister hung out with Priya one night so Mike and I could have a night on the town with Uncle Jerry.  We had a great time and were sad to see everyone return to FL.


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