THAT ONE DAY AT A TIME THING...

Today has been an up and down kind of day.  We found out today that the doctors found a vertebral defect in Priya's spine on X-ray, and they were also questioning the presence of a mediastinal mass adjacent to it.  They were also concerned about the color of the fluids coming out of her stomach drain (still way too dark) and wanted to make sure that was not due to bowel obstruction.  So, poor Priya was sent to radiology for more tests, a spinal ultrasound and upper GI.  The ultrasound showed no evidence of a mass, so that gave us some much needed relief.  We still don't know what the spinal defect means for her, but until we get a consult with a doctor about it, we will put in the basket of future worries (right along with her cleft palate).  The upper GI did show evidence of malrotation of part of her intestines.  This can be pretty serious if it leads to bowel obstruction.  For now, all they will do is watch her.  They won't do another surgery unless it is absolutely necessary.  So, poor girl still didn't get to eat today.  You can tell she sure wants to.  For now, her pacifier is her best friend.  She did get off the bili light today, so we've got to have lots of good looks at her face and are getting to hold her more!  She is on daddy's lap as I type this, and she looks so, so comfortable and peaceful.  I can't help but feel relaxed and peaceful right along with her.